tag:blogger.com,1999:blog-66069145976853767272024-02-18T20:45:28.591-05:00Joshua's StoryJoshua was diagnosed with T Cell Acute Lymphoblastic Leukemia on 14NOV08. This blog is a way for Joshua to share his battle plans with all of his friends. We will try and keep it updated as much as we can. Please feel free to leave comments, pictures, etc... all of Joshua's hospital locations have internet access and he will read them as often as he can. Thank You to everyone for all of their thoughts and prayers! Keep them coming!Joshua The Warriorhttp://www.blogger.com/profile/08479329384806715144noreply@blogger.comBlogger1277125tag:blogger.com,1999:blog-6606914597685376727.post-75405247560498866112012-05-12T23:11:00.000-04:002012-05-12T23:11:07.410-04:00Our little hockey player!<div class="separator" style="clear: both; text-align: center;">
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After waiting for three and a half long years Joshua is finally on his first hockey team! They had their inaugural game today with Joshua taking his first shift on the ice. He did really well and played hard along with the rest of his teammates. This is the realization of a dream Joshua has had since he got diagnosed way back in 2008 and after a long fight and a lot of patience and practice he has arrived. We are so very proud of our little hockey player!</div>
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I know it has been a while since I posted anything so it is only fair to give you all an update on what has been going on in our part of the world. Joshua recovered wonderfully from his port removal surgery and only has a small scar to show for it. We finally had to move out of our house and are now renting a house not very far from where we lived before, we are still unpacking and trying to figure out where everything goes :) We were incredibly lucky to have managed to hang on to our house the entire time Joshua was in treatment but our time has run out. So we are beginning a new adventure as a family and are looking forward to growing stronger this year as we move forward. Everyone is healthy and the boys are doing great in school and already looking forward to summer vacation.</div>
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I will leave you with a short clip of Joshua handling the puck for the first time as a member of a hockey team :)</div>
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<br />Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-66189574551659872472012-04-03T00:09:00.001-04:002012-04-03T00:09:08.001-04:00First labs… 02APR12<br />
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Joshua headed of to the clinic for his first set of labs after getting off of treatment and they all came back just fine which was a big relief for all of us. They also tested his IVIG levels to see if they are holding steady but we won't have the results of that until later in the week. </div>
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Last Friday Joshua took part in the Cut for a Cure event where celebrities volunteer to have their heads shaved to raise money for pediatric cancer. Several of the Lightning players lead by their captain Vinnie Lecavalier took part again this year and Joshua got paired up with our Newfie brother Teddy Purcell and got to help shave his head. They have raised over $250,000 so far and we are extremely proud to have Joshua take part in their fund raising efforts.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-70690086922316985352012-03-27T22:46:00.001-04:002012-03-27T22:46:15.684-04:00Joshua got Deported!… 26MAR12<br />
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Joshua got swept up in an early morning raid and transported to the St. Joseph's holding facility. After waiting several hours to get the paperwork in order he was summarily deported and then given back into our custody for further processing.</div>
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To all of us today really signified the end of his treatment, the final step in getting him out of the cancer life and back to being a normal, healthy boy. We have waited a long time to get his port removed and it was a great relief to see the surgeon come out with a smile. </div>
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The surgery went extremely well and only took about 45 minutes to complete. His port and all it's sundry attachments came out without a fuss and nothing decided to stay behind. We walked into recovery to find him wide awake, thirsty, and ready to go get something to eat. We got him checked out of the surgery center and drove him straight to get something to eat before heading home to rest. He is going to be pretty sore for a few days and will have to take it easy for a couple of weeks while he heals up. Like always he went through it all with a smile and was a great patient for the doctors and nurses. We hope it is a long time before he has to be in that position again.</div>
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We will go back to clinic on April 2nd for our first labs after treatment. We will post the good results after we get them ;) Stay tuned...</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-83504987365487889572012-03-26T23:00:00.002-04:002012-03-26T23:00:05.480-04:00Being Deported… 26MAR12<br />
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Joshua has been doing very well since we last posted, working hard on school and trying to catch up. Last Wednesday Joshua attended the Lightning Clinic for Ice Skating and had a blast. </div>
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This past Saturday he had his first evaluations/tryouts to be on a recreational team for hockey. Jarrod also had his evaluations the same day. Both boys did very well. The teams start to play at the end of April and we will find out in a couple of weeks about their teams. </div>
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With all that going on, we wanted to schedule Joshua’s port removal. We wanted to have it out after his evaluations and before his team started. After talking to the doctors, Joshua will have his port removed tomorrow. This gives him enough recovery time before hockey. He will be sore for about 4 days and unable to do a lot of activity involving his arm for a few weeks but he should be ready for hockey by the end of April. Hockey is all Joshua talks about and its all he wants to be able to do. We are very excited to have Joshua get his dream of being a hockey player. </div>
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Please keep Joshua in your prayers tomorrow and we will post after his surgery.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-3591647358078570442012-03-11T00:12:00.000-05:002012-03-11T00:12:03.510-05:00The end of the long and winding road… Day 1210 10MAR12<br />
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Joshua made it! After fighting every day for the last 1210 days he is finally done with treatment and he is victorious in his battle against cancer!</div>
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I have been waiting for this day for along time and have oft despaired of it ever arriving at all. It has been an incredible journey for all of us and I am very thankful for all of you who have taken a few minutes out of your lives every day to follow along with us. Having all of you watching over Joshua has been very special and has made the path easier to tread. </div>
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We have met many wonderful people along the way, our family has had some amazing opportunities and experiences. We have lost some of our friends and watched some win their battles. We have watched our children grow older and welcomed a granddaughter to our family. We have grown as individuals and as a family.</div>
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I must admit that when I started this blog those many long nights ago sitting on a stool in the corridor outside Joshua's room in the PICU at Tampa General, glancing up every now and again to watch Joshua sleep in his bed with Renee packed into a corner behind him how much a part of my life it would become. I didn't realize the scope of what I was starting. As I look back now I am amazed at how many words and images I have sent out into cyberspace chronicling Joshua's journey for him. I promised myself when I created this that there would never be a day that we did not record the events of Joshua's journey and we have done it, a post for every single day from his first day of treatment until his last. </div>
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Some days the words came easy, others not so much. </div>
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Some days I finished entries through tear filled eyes, others with a grin on my face or a chuckle. </div>
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Some days when I was at a complete loss for words Renee came in and rescued me. </div>
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Together we have fulfilled my promise.</div>
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I chuckle at some of the places I have posted from, crouched outside a hotel office late at night, from a bunk bed out in the woods, after walking through the snow to find a signal, from all of our journeys together, from airports, cars, from where I stand right now. It has always been a labour of love and I hope that in the years to come it will provide Joshua with the chance to remember his journey and grow from it. </div>
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It is with great joy and great sadness that I bring this chronicle to a close. I will miss sharing Joshua's journey with you but I am also glad that his journey is over.</div>
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Now we must embark on a new journey, embrace a new "normal". We get to stop asking Joshua every night if he took his chemo before he goes to bed. We must face the uncertain future that is after treatment which is frankly quite terrifying. But we will continue to do it the way we have all these past days… Together.</div>
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As part of the end of his journey I asked Renee to tally up all of the chemo doses and procedures the Joshua has had over the last 1210 days:</div>
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Chemotherapy drug Doses:</div>
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Cytarabine - 25</div>
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Cyclophosphamide - 3</div>
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PEG-L-Asparaginase - 7 (shots in each thigh simultaneously)</div>
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Vincristine - 125</div>
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Daunorubicin - 3</div>
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Methotrexate IT - 47</div>
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Methotrexate IV - 4</div>
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Methotrexate PO - 108</div>
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Doxorubicin - 3</div>
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Thioguanine - 14</div>
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Mercaptopurine - 1108</div>
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Steroids Doses:</div>
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Prednisone - 748</div>
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Dexamethesone - 14</div>
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Procedures:</div>
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Port Surgery - 1</div>
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PIC Line - 1</div>
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Kidney Dialysis - 1</div>
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Femoral Catheter - 1</div>
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Endoscopy - 1</div>
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PET Scan - 1</div>
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EKG - 2</div>
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Echocardiagram - 1</div>
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Bone Density Scan - 1</div>
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Port Study X-ray - 2</div>
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CAT Scan of Sinuses - 1</div>
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CAT Scan of Abdomen - 1</div>
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CAT Scan of Cranium - 1</div>
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CAT Scan of Chest - 1</div>
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Ultrasound of Abdomen - 1</div>
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Chest X-ray - 11</div>
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Radiation to Cranium - 8</div>
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Bone Marrow Aspirations - 4</div>
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Lumbar Punctures - 47</div>
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Transfusions Red Blood and Platelets - 18</div>
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IVIG Transfusions - 28</div>
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Total number of inpatient days (gypsy mode) - 199</div>
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Total cost of his treatment - $1,500,000, a bargain :)</div>
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He has 950 bravery beads on his string. One for each thing that was done to him at the hospital. The total string is now over 40 feet long and stretches from the front door of our house to the back. It is to become the garland for our new Christmas tree. It is joined by a string of 1216 orange beads that represents every dose of oral chemo that Joshua has taken. A string of 752 monster beads for each steroids dose and a string of 28 pink beads, in honor of Miss Carolyn as it is her favorite color, for his IVIG transfusions.</div>
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It is a humbling list.</div>
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So here is our gift to you Joshua. A record and a remembering of all the days of your journey fighting cancer. It has been a long and winding road that we have trod together and now we have reached its end.</div>
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Joshua your strength has never wavered.</div>
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You have faced each day with a smile and a courage the knows no bounds. </div>
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Words cannot express how proud I am of you, my little boy, my little warrior.</div>
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Tears cloud my eyes as I search for the words to tell you how much I love you.</div>
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You are the bravest person I have ever known.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-76893938036696098482012-03-11T00:07:00.001-05:002012-03-11T00:07:10.951-05:00Celebration time!!… Day 1210 10MAR12<div class="separator" style="clear: both; text-align: center;">
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Today being the amazingly special day it was called for a celebration!</div>
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But first Joshua had to take his LAST DOSE OF CHEMO!</div>
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A little while later Renee's parents picked us up and took Joshua and the family to a really nice dinner at Red Lobster. They choose the restaurant so that Joshua could get his favorite crab legs, which he did :) It was a yummy meal! We left there and headed in to Tampa because our great friends at the Pediatric Cancer Foundation had gotten the whole family tickets for the hockey game. My dad met us at the ice rink and we all headed inside. Our tickets came from the Vincent Lecavalier Foundation and were in his suite, center ice! Vinnie is the Captain of the Tampa Bay Lightning and a fantastic guy with strong ties to the pediatric cancer world. We got a chance to talk with him a bit in the suite during the game. </div>
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<tr><td class="tr-caption" style="text-align: center;">Joshua and Vinnie Lecavalier</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Our view of the ice</td></tr>
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The suite was fantastic and the boys and all of us really enjoyed being there. During the second intermission one of my good friends who works in the television studio for the Lightning put a special message to Joshua from all of us on the jumbotron, it read:</div>
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Congratulations to 9 year old</div>
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Joshua Gandy!</div>
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You are 100% cancer free!</div>
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You won buddy!</div>
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It was amazing to see that lit up in the middle of the rink for 20,000 people to see!</div>
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After the game was over we headed down to meet up with Coach Raymond for a visit. He took Joshua back to hang out with the players for a little while to celebrate his final day of treatment. </div>
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<tr><td class="tr-caption" style="text-align: center;">Joshua with Martin</td></tr>
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We headed home after that, tired but having had a wonderful celebration for our little guy. A big thanks to all of the people who helped make his night so special!</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-79185891384148449842012-03-10T00:02:00.002-05:002012-03-10T00:02:16.485-05:00Tomorrow… Day 1209 09MAR12<br />
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There are a couple of things I think everyone should know. </div>
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First is that Joshua and our entire family would not have been able to make it through these past 1210 days without this blog and without you, our readers, friends and family reading and posting everyday.</div>
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Second, Lee and I started this blog so we could recount everyday that Joshua has been in treatment. We decided early on it would either be a daily thing or every once in awhile. We decided that our goal was to write everyday so we could make this account of our son’s life into a book for him to keep. With that said, I would like to thank my husband, Joshua’s amazing dad, for holding up our end of the deal and never faltering from it even though he sometimes posted at 1 a.m. or had to walk out into the cold snow up to the main buildings so he could get a signal on his computer. I did get my chance to write every once in awhile but Joshua’s Story is credited completely to Lee.</div>
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Now for the hard part... Tomorrow Joshua will take his very last dose of Chemo. This is the day we have been waiting for and thought would never come. It will also be the day that we will stop posting daily, detailing Joshua’s life. Don’t freak out right away. We will still continue to post updates, like clinic visits, etc. but it just won’t be on a day-to- day basis. Lee and I both feel that this is the right time. It will be a time of adjustment for us to step into our new life without cancer. We, as a family, will never lead a “normal” life again but who wants to be normal, right?</div>
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I would like to request that all of Joshua’s followers please post a note for Joshua even if you have never posted before, so we can include your thoughts into Joshua’s book. This will always remind him how special he is and how much he was loved and thought of in these past 3 ½ years. Thank you from the bottom of our hearts for keeping our little boy in your prayers and thinking of him often. He is healthy and Cancer Free!</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com7tag:blogger.com,1999:blog-6606914597685376727.post-90955500854307125222012-03-08T23:18:00.002-05:002012-03-08T23:18:35.453-05:00Typical busy day… Day 1208 08MAR12<br />
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Today was a typical busy day around our house. The boys had school this morning with Renee and I had lots to get ready for work before heading out for the day. Renee had to work this evening so the boys stayed home together until Pa came over to watch the hockey game with them. Renee got home a bit later and I followed after another bit. I got to talk to the boys for a little while before it was off to bed for both of them. We are only two days away from Joshua's last chemo does and end of treatment! Saturday is the big day and we are all looking forward to it! The end is near after our long journey...</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-80613569817567997942012-03-07T22:36:00.002-05:002012-03-07T22:36:23.576-05:00School with dad for a bit… Day 1207 07MAR12<br />
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Renee got Joshua started on school this morning and then passed the baton to me as she had a parent's advisory board meeting at the hospital. Joshua and I worked on his school stuff until he was finished and had a pretty good time at it. After a bit of a break Joshua wanted to go out and practice some hockey skills so we grabbed our skates and sticks and headed out into the street. He did really well, we are working on his wrist shot and he can really get it moving pretty quickly.</div>
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Renee got home a short while later and we all took a little break unit it was time to get dinner going. It was taco night which is one of Joshua's favorites and I got to add in fish tacos for me and Renee… yummy! The rest of the evening was pretty standard and after relaxing a bit it was off to the showers and then bed. Tomorrow we start our 3 day countdown to the end of chemo!!</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-39439301898906572602012-03-06T22:54:00.002-05:002012-03-06T22:54:49.792-05:00Giggle play… Day 1206 06MAR12<br />
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School dominated the morning like most weekdays and the boys did great. Joshua got kind of a late start since he slept in for quite a while, a normal Tuesday after methtotrexate kind of day. </div>
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After lunch Miss Cocoa called to talk to Renee and before long Joshua was talking to Trent and they set up a get together. Joshua and I ran over and picked Trent up at his house and then came home so they could get some play time in. The giggles started in the car and didn't stop until they were eating dinner and that was only because they couldn't chew and laugh at the same time. As a part of dinner tonight we had a some of the loaf of bread that Jarrod baked today. It was his first time making bread and he did an awesome job, all the boys liked it a lot. After a little more playing around the house it was time to take Trent back home and then come back to watch the hockey game. The Bolts didn't have a good night and lost pretty badly, a bummer for sure. The boys headed off to bed as soon as the game was over.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-70667004677071286302012-03-04T22:26:00.002-05:002012-03-04T22:26:25.091-05:00Windy day… Day 1204 04MAR12<br />
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The winds came in with a vengeance late last night and it was quite blustery for most of the day. Joshua and Trent were up early but at least they waited for the sun to g et up off the ground before they started their day. A bite of breakfast and then they were off to church with Trent's family and a little playtime afterwards. Jarrod and I did our normal morning stuff and then got ready to go get some ice time. Joshua decided to opt out of skating this time to give is ankle a little more time to heal up. Jarrod and I had a good skate and enjoyed the time together. Hockey tryouts for both of the boys are coming up soon and with luck we can get them both sorted on to a team. We all convened back home for the rest of the day together. None of us did a whole lot I have to admit. Renee made a nice beef stew and fresh baked bread for dinner which was perfect for a cool windy day. We watched a little tele afterward and then it was showers and of to bed.</div>
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In the morning Joshua will have his last on treatment clinic visit! Only a few more days to go until he will take his last dose of chemo!</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-36523157277291976432012-03-03T22:43:00.002-05:002012-03-03T22:43:47.638-05:00Giggles night… Day 1203 03MAR12<br />
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Our morning was pretty laid back. Renee had to leave for work early and the boys spent a quiet morning doing stuff around the house.</div>
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Joshua called Trent this afternoon and asked him over to play and spend the night. His mom dropped him off right before dinner and the fun began. The boys had a full evening of playing and the giggles pealed through the house almost non-stop :) </div>
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Renee and I watched the hockey game and Jarrod played on the computer and wandered in to check on the game every once in a while. The Bolts won in overtime with Joshua and Trent cheering them on, they wandered in to our room just in time ;) It was a fun evening for all of us and I am sure the giggles will start back up as soon as breakfast is over.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-11097638589946436932012-03-02T23:29:00.000-05:002012-03-03T10:20:34.031-05:00No more IVIG!… Day 1202 02MAR12 Miss Carolyn showed up bright and early and in her usual wonderful fashion got Joshua accessed and got his IVIG started. He did really well and had no issues at all. She de-accessed him around 2 and went on her way. This is the last time that Joshua's port will be accessed! No more needles poking out of his chest, no more tubes hanging out from under his shirt! Many thanks from our family to the wonderful Miss Carolyn, she has been a blessing and turned what could have been an unpleasant monthly treatment into a pleasant time for Joshua. We will miss her monthly visits :(
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<tr><td class="tr-caption" style="text-align: center;">Last time with the pump!</td></tr>
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Renee and I both had to work tonight so the boys went over to Carly's house to play before heading over to grandma and pa's for the rest of the evening. They had just finished watching the Bolts win in overtime when I arrived to pick them up. It was straight home and off to bed after that.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-38924125330964889422012-03-01T22:46:00.002-05:002012-03-03T10:20:47.174-05:00Another last… Day 1201 01MAR12<br />
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Normal day for the most part with school for the boys and work for me. At five Renee and the boys headed into the CCC for family night. It was our last time at family night as a family in active treatment! It has been many, many months since we started going to family night and we have made so many great friends there. I got off of work a bit early and headed over to hang out for a little while at the tail end of the evening. We will continue to go to family night we will just get to join a new club of families finished with treatment which several of our oldest friends are already members of. In the morning Joshua will get a visit from Miss Carolyn and get his final, we hope, IVIG transfusion. Only 9 more days to go on the chemo road...</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-44737912624294040972012-02-29T22:20:00.003-05:002012-02-29T22:20:37.452-05:00Leap Day… Day 1200 29FEB12Today of course only exists once every four years which makes it a fitting day for us to start Joshua's 10 day countdown to his end of treatment.
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His ankle is looking better today and the swelling has gone down quite a bit. We are going to have him take it easy for a few days to make sure it heals up without him injuring it again. He got his school work done this morning and then spent the balance of his day playing quietly inside. Renee is a bit under the weather currently so we let her rest up today so she can start feeling better. Jarrod cooked up a nice batch of corn chowder for lunch and I took care of the dinner hour. We boys spent the evening together watching a little tele before it was time for them to head off to bed. </div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-28309445475806526672012-02-28T22:59:00.001-05:002012-02-28T22:59:51.440-05:00Ankle problems again… Day 1199 28FEB12<br />
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Joshua spent the first half of the day getting bunch of his school work taken care of. He seems like he got enough sleep the night before and stayed pretty focused through out the morning. He was done by lunchtime and spent the early afternoon playing around the house. Carly called after she got out of school and wanted to know if Joshua could come over for a bit so Renee ran him over to her house. When he came home his ankle was pretty swollen and he said he slipped on some grass and twisted it. It is his left ankle which has caused him lots of problems before and by the time the hockey game got started it was really swollen and we started icing it to keep the swelling down. I am afraid that his ankle will cause him problems for quite a while as it has been injured over and over. It looks like he just sprained it again so we will keep it wrapped up tonight and see how he feels in the morning. The Bolts played a good game and won which made the boys happy. It was off to bed after that and I hope Joshua can get a good nights rest in.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-12839175997433140052012-02-27T22:39:00.000-05:002012-02-27T22:55:20.106-05:00Mondays after vacation are no fun… Day 1198 27FEB12 Joshua slept in this morning and was just getting up as I walked out the door to go to work. The boys jumped back into their school work and got done after lunch. Joshua got a call from Carly and headed over later on to spend some time playing with her.<br />
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Our trip back yesterday was tiring as we had two flights and a 3 1/2 layover in New York. Luckily we flew from Portland to NY with Wojtek and Desiree's families so we had somebody to hang out with in the terminal. Our experience at camp was wonderful and although we are all dragging today we would go back in an instant. Here a some of the pictures we took to share:<br />
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<br />Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-59437259977734844072012-02-27T00:29:00.001-05:002012-02-27T00:29:12.803-05:00Leaving camp... Day 1197 26FEB12After lunch we headed into Portland to start our journey home. The trip was long but we finally made it back home. We are all exhausted and headed for bed. I'll have more details tomorrow when my brain starts working again :)Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-37185221045516950222012-02-25T21:50:00.001-05:002012-02-25T21:50:43.034-05:00White wonderland... Day 1196 25FEB12We woke up to a winter wonderland this morning. The snow fall from last night continued and had built up on all the trees and the ground. It was quite beautiful walking up to eat breakfast. Right after breakfast the boys and I headed down to play some boot ball on the ice rink. Joshua was playing goalie and was doing a fine job of keeping the puck out of the net. The boys headed off to activities before lunch while Renee and I took a nice snowshoe walk through the woods. The afternoon was busy and before we ate the adult men took on the teenagers in a game of floor hockey outside on the basketball court. It was a spirited game and we all had a blast. Dinner was the next order of business followed by the closing celebration. In the morning it will be in the single digits up here so everything will stay good and frozen. We leave camp for the airport right after lunch but will not arrive home until almost midnight. It has been a marvelous camp experience and we are looking forward to coming back again sometime.Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-31561046212840623442012-02-24T21:52:00.001-05:002012-02-24T21:52:28.659-05:00Snow made it... Day 1195 24FEB12We awoke to temps below freezing and a slight overcast at breakfast time. Today was the day we got to go skiing at Shawnee Peak which is what the boys have been looking forward to most of all. We had morning activities and then got ready to go. We hopped in the van and our driver Kevin whisked us off to the mountain. The boys and I got all our gear, grabbed a quick bid of lunch and headed out to the slopes. We took a refresher class with a great instructor, Melinda, who had us all up to snuff and carving powder in no time. We spent the rest of the afternoon trying different runs down the mountain and all of us had a wonderful time. I am certain that we will all be pretty sore in the morning. As we headed back to camp it began to snow just a little bit and then just after dark it started coming down in earnest. Big lazy beautiful snowflakes :) the boys were thrilled and immediately went outside to play in the new snow. It was the perfect consistency to build snowmen with so we wasted no time in erecting a life size model. As I sit here and write the snow is still drifting to the ground and we have gotten close to 3 inches so far. Should be beautiful in the morning when we get up.Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1tag:blogger.com,1999:blog-6606914597685376727.post-56736147029201691912012-02-23T21:36:00.001-05:002012-02-23T21:36:14.266-05:00Snow is on the way... Day 1194 23FEB12After a good nights rest we all got up and headed up the hill to get breakfast. Camp officially opened this morning and we all spent the day at different fun activities and had a blast. Renee and I got a nice walk in the woods and enjoyed it immensely. The camp had a NHL goalie come out today to visit which Joshua loved, he even scored on him in floor hockey! The rest of the day was great and after dinner we got our skates on and took a spin on the much harder sheet of ice, it has been getting colder as the day progressed. The forecast calls for 3-6 inches of snow to come in overnight and tomorrow while we are skiing. The kids are excited! We will keep our fingers crossed that the forecast holds true.Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com0tag:blogger.com,1999:blog-6606914597685376727.post-33939991756819937092012-02-22T21:09:00.001-05:002012-02-22T21:09:15.376-05:00Not so much snow... Day 1193 22FEB12We got up early in the morning and quietly loaded all the suitcases into the car and set out for the airport. Our flights were on time, as comfortable as plane travel allows and we arrived in Portland ahead of schedule. There is a lot less snow up here than we had last trip and it was in the 40's when we arrived. The van was waiting at the airport to take us to camp and we got settled in after a bite of lunch. The boys spent the afternoon running around and playing in the snow. Camp looks a lot different without the four feet of snow covering everything and we discovered quite a few new things. We have a bunch of families up from our area this time and it is great to know so many people here. After dinner and camp activities the boys and I got our skates and took a few turns around the patch of ice they have frozen here. Still way too soft but we had fun any way. The weather is supposed to get colder over the next few days and there is a good chance for snow on Friday. We will keep our fingers crossed.Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com0tag:blogger.com,1999:blog-6606914597685376727.post-18777182083238225942012-02-21T21:02:00.001-05:002012-02-21T21:02:59.211-05:00Look out Maine here we come… Day 1192 21FEB12<br />
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Today was a bit hectic as we prepared our stuff for our departure tomorrow. Renee took charge of all the packing and had it done a lot quicker than I would have managed. The kids are excited and we are all looking forward to our little getaway for a few days. Look for updates from the far north and lots of pictures when we get back home.</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com2tag:blogger.com,1999:blog-6606914597685376727.post-16178198598166175752012-02-20T23:07:00.003-05:002012-02-20T23:08:43.307-05:00Three strikes and your out leukemia!… Day 1191 20FEB12<br />
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Wonderful news friends of Joshua! We got the results of the three tests that they ran on Joshua from his blood, spinal fluid, and bone marrow and they all came back <b>NEGATIVE</b> for cancer! </div>
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This is the best news we have gotten in 3 1/2 years and we are all overjoyed. Joshua was over playing at Carly's house when Renee got the news from the clinic. We weren't expecting any results until next week but they came back sooner than expected. Renee called Joshua straight away to give him the news and he was pretty happy. I was still at work when she called and couldn't wait to get home to give Joshua a big hug. He still has several weeks of chemo to finish but as far as we are concerned he has won! This is truly a <span class="s1" style="color: red;">red letter day :)</span></div>
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In other news we are preparing to return to Camp Sunshine in Maine the day after tomorrow :) We are all super excited about getting back to the far north and enjoying some seriously cooler weather compared to home. Tomorrow we will finish packing and preparations for a very early departure Wednesday morning. There will be a bunch of families from here going up this time so we all will have lots of good friends to hang out with and enjoy the snow. Should be a wonderful trip and a nice break from Florida for a few days.</div>
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So everyone clap your hands and yell woohoo! Joshua is cancer free! </div>
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Boy does it feel good to be able to say that :-)</div>Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com3tag:blogger.com,1999:blog-6606914597685376727.post-92120120133739875402012-02-19T22:40:00.001-05:002012-02-19T22:40:29.491-05:00Full day of fun… Day 1190 19FEB12 Joshua was up early to leave with Trent to go have some fun. They went to church and then headed off to the movies for a matinee. In the meantime we had a quiet morning at home and were treated to a visit from my dad and Miss Missy after lunch, he even brought cookie to share :) A while later Joshua came back with the entire Lewis clan and we had a great visit with Charlie and Cocoa while the kids ran about and played. It was nice to have the house full of friends, family and the laughter of children for a bit. After a spell everyone headed home and we settled in for the evening. Joshua's back was bit achy so we will keep an eye on that tomorrow and see how he feels then.Lee Drinker of Konahttp://www.blogger.com/profile/05223508337410855516noreply@blogger.com1