Sunday = rest… Day 569 06JUN10

We rested most of today. None of us got up very early and although we did a little work around the house and played outside in short bursts we didn't do much else. We were all still pleasantly tired from our fun day yesterday. The heat has already become oppressive and we can only be outside for short periods before it catches up with you. The boys come in from riding their scooters with beet red faces and soaked shirts. Working hard to keep them hydrated. Joshua and I played a little hockey after dinner but we gave up after about fifteen minutes and came back inside. Tonight we watched Game 5 and worked on Joshua's homework. He has quite a bit to get done by Tuesday. Tomorrow is a busy day especially the clinic part. Joshua is due for pentamadine as well as vincristine tomorrow so we will be there for a bit.

Hanging with our clan… Day 568 05JUN10

Today was a play day for the whole family. We puttered around the house until lunchtime when we headed out for Tiffany and Nate's place. We were joined by Ania, Lukash and Wojtek. We spent an incredibly fun day in the pool, cooking out, laughing, and gorging ourselves to capacity. Renee, Tiffany, and Ania whipped up a table load of goodies and the grazing was plentiful and delicious. As always we counted on Nate "The Grill Master" to take care of getting the meat cooked and he did not disappoint. We spent most of the afternoon in the pool where the thermometer under the edge of the roof hovered right at 100 all day. You would never know those three boys were fighting cancer in their little bodies. Their energy, it seems, is boundless and the laughter and smiles are infectious. We ate dinner and played for a while before heading back to the pool for the remainder of the evening. In the fading light we said our goodbyes and each headed off for home. I know that the boys will all barely touch their heads to a pillow and they will be fast asleep tonight.

IVIG again… Day 567 04JUN10

Joshua spent most of his day hooked up to an IV pump getting his IVIG treatment. Once again thankfully he had no adverse reaction to the drug. He had a pretty good amount of energy afterwards and took a bike ride with his brother on the golf course. We got in a little hockey playing after dinner when the sun was sneaking down and it wasn't so hot outside. The rest of the evening was spent watching game 4 of the Stanley cup. Jarrod crashed on the couch just after 9 and Joshua fell asleep laying next to me on the couch shortly afterwards. They were both pretty tuckered out and they each got an early start this morning. Jarrod went over to help Grandma Peters do some canning and Joshua got started 7:30 with his pre-med. Tomorrow we are supposed to have a fun play date with our extended family now that everybody is out of the hospital.

Play day… Day 566 03JUN10

Joshua had a fun day today. Jayden and Cameron came over this morning to spend the day and were soon joined by DJ. We had a full house of boys who remarkably played quietly and nicely together the whole time. I had to go off to teach a class but Renee and the boys got  ready after resting for a bit and headed in to the Children's Cancer Center for family night. They had a good time and she said the boys basically disappeared as soon as they walked in and had  a lot of fun. When I got home tonight Joshua was asleep in our bed and I noticed he had a lighting bolt on his forehead. I came out and asked Renee if Voldemort had attacked Joshua this evening :) Joshua didn't think I would notice that he had a large blue lightning bolt across the front of his head… Tomorrow is another round of IVIG so Joshua will be hooked up for most of the day.

Allie bell… Day 565 02JUN10

Joshua had a great day today. We started off the day slowly which was a good thing. Everyone was worn out and we all needed our rest. Lee headed off to work and before we knew it Jamie and Allie arrived with Bella and Spike in tow. Allie gets bigger every time we see her. She was all smiles for Uncle Jarrod and Uncle Joshua. She is almost crawling…any day now. In the afternoon we headed off to my mom's house. She went picking fresh tomatoes and was in the middle of canning them. Everyone helped out including Allie. She was fascinated with the entire process and I'm glad that my mom is passing down tradition to the kids.

CVS Celebrity Pro Am… Day 564 01JUN10

Joshua started his day with school and his teacher. He did well and has been improving, apparently the fog has lifted for now. As soon as she left we headed out for clinic. Joshua's count's are holding steady and everything looked good. We had a visit with Ania, Wojtek, Tiffany, and Preston who are still stuck in the hospital for now. Hope they get sprung real soon. Next stop was my dad's house for a little lunch from Ceasar's Pizza which is some of the best ever. After a little visits it was back on the road to the Children's Cancer Center. After we got done there we headed over to Innisbrook Golf Resort to attend the pre-party for the CVS Celebrity Pro Am Golf Tournament that will start tomorrow. Joshua was asked by the Children's Cnacer Center to speak along with Patty the CEO before the audience watched a video presentation about the CCC. He did a great job and was a celebrity for the rest of the night.

Joshua spent the rest of the night hanging out with James Taylor Curtis and his band. Joshua even went up on stage and strummed a little on JT's guitar. He was a total rock star! James Taylor Curtis is awesome….go buy his latest albumn!!!!

He was also invited by Big Nasty and his partner J.C. Nasty to attend an upcoming Buccaneers game this fall. Front row with The Biggest (and scariest!) fans for the Bucs! Joshua will even get to have his face painted. We can't wait to see his face on the jumbo-tron at Raymond James Stadium.

Joshua also got to meet a lot of other "celeb's" at the party but we just couldn't get everyone's names fast enough. He was really working the room!  That's our Joshua! Tomorrow we shall rest up for a little while before we get a wonderful visit from Jamie, Allie and the puppies!

Memorial Day… Day 563 31MAY10

We had a quiet Memorial Day at home. In the morning we cleaned house a bit and took care of  a few other chores. In the afternoon we had a picnic inside with my dad who brought hot dogs and fixings to go with them. We had a nice visit and the boys got to show off their street hockey skills for a little bit before the heat got to them. The evening was quiet and unassuming with all of us watching game 2 of the Stanley Cup.

Tomorrow is going to be a busy day with lots of different activities planned. We will be on the move most of the day and will probably not make it back home until late. I hope that clinic in the morning shows Joshua's counts are up as most of his friends are in the hospital right now. We don't want to join them :)