Play time and hockey… Day 911 14MAY11

Joshua and Jarrod took off this morning to go hang out with Taylor and Avery over at Renee's parents which left Renee and I with a free afternoon. We got some errands taken care of and then came home since Jamie and Allie were headed our way. They arrived and we spent a fun and rainy (yeah!) afternoon together relaxing. We headed over to Renee's parents for a nice dinner and a chance to visit a little before heading back for the hockey game. The bolts started their conference final bid tonight and we all cheered them on to a decisive victory against the Bruins. Go Bolts! It was a great day to cap off a fun family filled day!

IVIG again… Day 910 13MAY11

Joshua got up early and got his port ready an took his pre-med in preparation for his IVIG transfusion. Mis Caroline showed up and got him accessed and hooked up to the pump. It went well and other than making him pretty tired he was okay. He did run a little bit of a fever later in the afternoon but it cleared up and he felt fine afterwards. His teacher couldn't make it because she had a sick child at home so he didn't have to contend with school work while hooked up which was nice. So we can put yet another IVIG treatment behind us and hope that it keeps doing its job of helping to boost his immune system.

Hungry boy… Day 909 12MAY11

The steroids really kicked in today and Joshua was constantly hungry. I lost count of the times he wanted something to eat starting early this morning and going all day long. It has been a while since the steroids have affected him like this. Otherwise it was a pretty normal day, Jarrod did school, Joshua did a little school and practiced his hockey skills. Tomorrow morning Joshua will get another IVIG transfusion which will take all morning, his teacher is coming as well so he will have a full day and hopefully there will be a little bit left to eat at the end of the day for the rest of us:)

A little cranky… Day 908 11MAY11

Joshua was a little cranky today as the steroids really begin to take hold for the week. He did school with his teacher and then headed over to Renee's parents for a little while so she could run some errands. The rest of the evening the boys played at home and they were watching a funny movie when i walked in from work. So all in all not a bad day just a few snarls from the monster that's all.

A little rough… Day 907 10MAY11

Joshua's started out the day a little rough, he was having a full on chemo episode. He stood in the kitchen for almost twenty minutes trying to decide what he wanted to eat for breakfast and finally gave up for a bit. His brain came back online after a little while and we not only got some breakfast in him but also got some of his school work done. Renee was gone this morning so it was just me and the boys for a change. Jarrod did great working by himself studying for his upcoming exams in school. After a break for lunch Miss Angela arrived to do school with Joshua, she arrived a few minutes after he had a pretty rough meltdown because Renee wasn't back home yet. We managed to talk him out of it and got him going again by having him show his new hockey gear to Miss Angela. After that he did really good and got through school without any more issues. Renee arrived home shortly after school was finished and we all settled in for the rest of the day. Joshua got some practice in front of the door blocking some shots from me while Jarrod finished his school stuff. After diner we watched the Mighty Ducks which the boys had never seen, they both really liked it a lot. I had forgotten what a good and funny movie it was. Tomorrow will be a better day for Joshua I hope and he can get some time in on school work with Renee at home. There are only a few weeks left before they are both finished and summer break can begin.

Start of a long week… Day 906 09MAY11

Joshua had a long day at the clinic starting early this morning. His ANC is a little high at 4704 and he is still battling a cough. He got his port accessed and then the waiting began for vincristine and the pentam treatment he was due. The doctor took a look at his foot and has ordered a bone density scan as soon as his cast comes of so we can get a baseline and see if his bones are weaker than they should be. They can't give him any supplements to help with the calcium loss because they negate the chemo drugs so we will have to wait until he is off of treatment next year. After they got all finished up Renee and the boys headed home to get his steroids started and get going on school work. The school year is drawing to a close and both the boys have just a little bit more work to get done. The rest of the day passed with only a few squabbles amongst the brothers and they were watching a movie together when I got home tonight. Another week of steroids means a chance that the monster might visit, I am hoping that he stays asleep the whole time :)

Happy Mother's Day!… Day 905 08MAY11

Today was a time to celebrate the wonderful mothers in our lives. We started off with a morning at home with Renee, just after lunch we headed over to Carly's house for her birthday celebration. The boys got to get in the pool and have some serious fun while the adults ate and chatted, my dad even got in on the party. We headed home to get ready for the rest of the family to show up. We had a full house for dinner and four of the mothers in our family in attendance: Renee, Mary Ann, Alecia, and Jamie. Brandon is in town for some classes and he was here as well. We all had a nice dinner and a chance to be together as a family. After everyone left we all collapsed on the couch and watched a little hockey. Joshua has a full service appointment tomorrow at the clinic so a good nights rest will do him good.

From all of us guys a very special wish to all the mothers in our lives, the world is a much better place because of you! Happy Mother's Day!!