Joshua got up early and got ready for Caroline to arrive to get his IVIG started. She showed up a little after eight and like always got him accessed and started without any problems. Joshua really trusts her and we are lucky to have her as his home nurse. While he was getting his IVIG he spent most of the time watching the tele and getting his school work done. Everything went right along without any problems and by 2:15 he was done.
Several weeks back Renee managed to find a really incredible deal on annual passes for MOSI and they arrived in the mail today so we decided to head up and give the boys a little reward for working so hard this week. They have always loved going up to MOSI and our new membership even includes IMAX movies which they really like. We did manage to get a movie in about tornados and we all agreed that it was pretty neat. The rest of our time at the museum the boys divided between the high ropes course and the hands on exhibits. MOSI closed at five so we only had a short time before we were headed back for home. Traffic was pretty bad and we were glad to finally make it back after sitting in the rain in a traffic jam for quite a while.
The rest of the evening was pretty routine and Joshua was resting comfortably, his batteries were pretty depleted by dinner time. In the morning we get to take the ice for a while and then work on stuff around the house. We always look forward to ice time :)
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1 comment:
Hey Snuggle Monkey,
Yeah for Caroline and her sensitive hands.
Great news about your school work. You have the determination and talent to do well.
I'm always happy to hear you have ice time. It can't be anything but great for all of you.
Keep kickin butt Mighty Warrior. You are my Champion.
Tons of Love Hugs and Kisses,
Nonna
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