Wednesday, July 8, 2009

Testing, Testing... Day 238 08JUL09

Answers were in small supply today while questions remained steady and high. We have gotten no results back from the bone marrow biopsy or any of the blood test that were done. Joshua is scheduled for more blood tests in the morning and maybe we will start to get some results back. His ANC is still hovering under 50 at 26 today. He has been unable to break out of the rut he is in. He should have recovered by now, he usually does. He is done with the Vancomycin, staph infection obliterated and banished to the outer reaches of the shadows.

Joshua had a great visit this evening with cousins Taylor and Avery. They played games, laughed, cut up, took a walk around the hospital and were mostly just precious kids. It helped keep Joshua's mind off the fact that he is not going to camp this time. We will probably be lucky if we can get him home this weekend. He is pretty bummed out about not getting to go. It didn't really hit him until today, up until now we have maintained that faint little glimmer of hope. Like so many times before we will just have to change plans and roll with the waves. There will be other opportunities, other chances to be a kid.

He was having a lot of pain in his arms and legs late tonight, hopefully due to his bone marrow kicking in the overdrive pumps and starting to make some more blood cells. When I talked to Renee he was getting some Tylenol to help with the pain. Hopefully he will be able to get a good nights sleep and feel better in the morning.

So for the foreseeable future we will continue as cancer gypsies, borne upon the whims of a disease we learn to hate more and more every day.


Nonna said...

Good Morning Snuggle Monkey,

Glad you got to visit with Avery and Taylor. Looks like you were all having fun.

Bummer about camp. I am so sorry you are not able to go.

I hope you are able to start climbing out of the rut today and begin building up your counts so you can go home, get outside and have some fun.

Hang tough mighty warrior - you are The Champion.

Tons of Love, Hugs and Kisses,


Renee said...

Bone Marrow came back Excellent.....No Problems....YEAH!!!!!!!!!!

Jamie(Sister) said...

Yay good news!!!! =) But no camp Joshy. =( Im sorry love bug, well we will just have make camp come to you or find something really fun for you to do when you get all better. Oh i know When your counts get really high again and you get to go home, Christian will have to take you and mommy to see the helicopters and maybe go swimming in the really big pool at his work!!! =) Well see...

Thats great Taylor and Avery came to hang out! They look like that had some fun with you plying the wii. =) Well i love you monkey butt kepp up the awesome fighting!! =)