I got a call from Renee this morning to come and pick them up as Joshua had gotten a day pass. His counts have actually dropped to 79 but Dr. O took pity on him and let him escape for a bit. It was great to have him home for a little while where he had a chance to relax and play with his brother. Jarrod and I had been saving a culinary surprise for Joshua, his favorite crab legs. We had found a really good deal on them last week and popped them in the freezer until Joshua could get home. So I made sushi and Renee cooked up the crab legs and we feasted. It was a great dinner and Joshua abandoned grilled cheese and really tucked in. He ate a huge dinner and was quite satisfied when he was done. Josh is a crab shelling machine and he really enjoys going to work on some.
Unfortunately after a hot bath it was time for him to return to the hospital and get hooked back up. It looks like we have several more days until he will be able to get home for good. It is just a matter of his counts climbing back up. Besides getting him out of the hospital we need to get him back on chemo, we are already two weeks behind on his treatment schedule. He also got his test results back today and we are discontinuing the Dapsone. He will get monthly doses of nebulized pentamidine instead. Its one less pill for him to take everyday.
Jamie, Christian, and Allie got to go home this afternoon. Both Jamie and Allie are doing great and I am sure they are happy to be back in their own bed. We are going to give them a few days to get settled and then go visit and see the new nursery.
I got a call from Renee this morning to come and pick them up as Joshua had gotten a day pass. His counts have actually dropped to 79 but Dr. O took pity on him and let him escape for a bit. It was great to have him home for a little while where he had a chance to relax and play with his brother. Jarrod and I had been saving a culinary surprise for Joshua, his favorite crab legs. We had found a really good deal on them last week and popped them in the freezer until Joshua could get home. So I made sushi and Renee cooked up the crab legs and we feasted. It was a great dinner and Joshua abandoned grilled cheese and really tucked in. He ate a huge dinner and was quite satisfied when he was done. Josh is a crab shelling machine and he really enjoys going to work on some. 
Unfortunately after a hot bath it was time for him to return to the hospital and get hooked back up. It looks like we have several more days until he will be able to get home for good. It is just a matter of his counts climbing back up. Besides getting him out of the hospital we need to get him back on chemo, we are already two weeks behind on his treatment schedule. He also got his test results back today and we are discontinuing the Dapsone. He will get monthly doses of nebulized pentamidine instead. Its one less pill for him to take everyday.
Jamie, Christian, and Allie got to go home this afternoon. Both Jamie and Allie are doing great and I am sure they are happy to be back in their own bed. We are going to give them a few days to get settled and then go visit and see the new nursery.
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5 comments:
All Right, Josh!
A day pass to go home and eat some good stuff. So glad you had your Sunday Sushi and Crab legs. Sounds like a great meal. I know you enjoyed playing with Jarrod at home instead of the hospital room.
Just keep on kicking butt and get your counts back up and you'll be home in no time.
Take it easy. Love, Laura & Frank
Hey Snuggle Monkey,
Crab Legs!!!! Yuuuuummmmmmy. I'm am so happy you got a day pass - it was good for everybody (except the now legless crabs). Hope your counts are back up really really soon.
Hang tough Mighty Warrior - keep kickin butt big time.
Tons of Love, Hugs and Kisses,
Nonna
COME ON ANC,
josh,
well look on the bright side at least you got to go home and eat crab legs(which are my favorite also) :) i bet it was super nice to take a bath in your own bath and mom i bet it was like heaven taking a shower in something rather than the "jailhouse' shower!! u guys hang in there and just remember U ARE AMAZING!!!
we will be in clinic tomorrow morning so PLEASE DONT HESITATE TO CALL ME IF U GUYS WANT ME TO BRING U ANYTHING!!
oh josh, preston says get your armor on his coming with the nerf guns buddy!! :)
hugs, Tiffany
Sorry you are still stuck, Joshua. That stinks! You are doing a great job - sometimes the hardest thing is just taking good care of yourself. But you're doing really really great. And congratulations on becoming an uncle!!! How amazing! I loved looking at the pictures of your new little niece - she is beautiful. She weighed almost two pounds more than our little Tybee (Hayden's little brother) when he was born in July, so she's a big healthy girl! I love her little cheeks.
Well take care, and hopefully you'll get to come home soon. We will keep you and your family in our prayers.
Scarlett Truong (Hayden's mom)
Yummy crab legs!! =) And you got to go home!! I bet you and mommy were excite! I hope your counts start to go up soon Joshy and hopefully those crab legs and sushi did some good. =) Allie misses her uncles already. ;)
Well i love you Joshua and hope that you get to come home soon.
XOXO LOVE JAMIE ALLE BEELA AND CHRISTIAN
ps we are all doing good at home. Allie is just to adorable. She is a picture perfect baby. =)
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