Tuesday, December 29, 2009

Slumber not... Day 412 29DEC09

Joshua started off today with more school work as he claws his way towards being caught up. Lately he has been much more interested in Indiana Jones Lego on the Xbox than anything else. He is still making progress though and I am sure he will get finished up and back on schedule.

Joshua was re-tested on Monday to see if he still needs the IVIG treatments every month. We got the results to day and he will need to continue the IVIG doses for at least another couple of months. His levels have improved but they still need to climb quite a bit higher before they discontinue the treatments so we have that to look forward to for a little while longer. The worst part is the amount of time it takes to get the infusion done, it pretty much chews up an entire day, plus the potential of really bad side effects from the meds. Not many silver linings in our world.

This evening we headed over to Jim and Sally's for an evening of food and fun. Taylor and Avery were there and they had a big slumber party planned with all of the kids. Unfortunately Joshua was not having his best night and he decided that he wanted to come home rather than stay the night. It was a classic combo of chemo and being overly tired, a rather volatile cocktail. So we came home and got him ready for bed. Hopefully things will seem a little brighter to him in the morning.

2 comments:

Nonna said...

Hey Snuggle Monkey,

Sorry you missed the slumber party - but sometimes it's decidedly better to be in your own snuggy bed.

Glad to hear you're getting caught up on your school work (even though Indiana Jones is probably more fun). Keep at it.

And keep kickin butt Mighty Warrior.

Tons of Love, Hugs and Kisses,

Nonna

Jamie(Sister) said...

Jim and Sallys hu..? Their house is full of fun. =)
Im sorry you werent feeling to well to stay the night monkey. Hope you have a better day tomorrow.

Awesome you are getting all caught up on your school work!! Whoo Hoo thats great Joshua! =)

XOXO LOVE JAMIE ALLIE BELLA AND CHRISTIAN