Wednesday, March 25, 2009

Our first date... Day 133 25MAR09

Joshua again spent most of the day sleeping. He is, we believe, still in a period of somnolence which may go on for another week or so. This could have, according to some research papers I read, possibly been the cause of the fever last week. Children who get cranial radiation almost always experience somnolent episodes and they will spontaneously resolve after an average of 18.5 days. This would be later this week. It may continue for over 30 days but this is pretty rare. They may also have febrile episodes as well as anorexia and stomach issues.

During some of his awake time he spent some time outside with Jarrod. The weather has been wonderful for him to get a little outdoor time.

Renee and I had our first date this evening since Joshua got diagnosed. I had bought tickets to go see Jesse Cook last June. As the date for the show got closer and closer we really started wondering if we were going to be able to go. Luckily everything worked out and we had a great time. Up until now our "dates" have consisted of going to the hospital cafeteria together. Jarrod and Joshua spent the night at Renee's parents. It was fun to be a "normal" couple for a little while.

Tomorrow Joshua has school with Ms. Lydia, it has been tough on him to get back into the swing of things this week. He has been out of school for weeks now and he did not really feel like doing much today. He continues to eat well other than not knowing what he wants.

We hope to cruise through this week without any more problems and be ready for chemo on Monday with good counts and Josh rested up.


Jamie(Sister) said...

Day 133. =) Good day monkey. Thats is always great to hear that everyone had a good/great day. I called mom today and dad answered because mom was sleeping and i heard you come in there and tell dad that you are hungry and you that you didnt know what you wanted =) that sound like me Joshy. I can never make my mind then i start to get mad at myself because i dont really have a craving for anything. =) Thats great mom and dad that you both got to go out and have some fun, i bet you both really enjoyed it. =) Well we will be sure to see everyone this weekend and hope to see Jarrod havent seen you in awhile buddy. =)


Nonna said...

Hey Snaggle Snuggle Monkey,

It is good to see you outside for a bit of sunshine. I hope the weather continues to be kind to you and that you get to spend more time outside.

I'm glad to hear Mom & Dad got to have their "date" and I hope they had a great time.

Keep eating little man - I don't think it matters what just as long as you eat.

Hope you can get back in the school groove and enjoy it.

We are getting snow here every day. It is incredibly beautiful. Maybe next year we can all get together in Telluride. By then Dylan will be somebody you and Jarrod can play with.

Tons of Love, Hugs and Kisses,