Thursday, May 7, 2009

Footsteps... Day 176 07MAY09

There is nothing harder to watch than disappointment and frustration blooming across your child's face. The kind of utter devastation that swims through their eyes for a few brief moments. Normally we witness these things because of some material object that has been denied. Maybe because it is time to leave or there is no time or resources to go to a favorite place.

Not because your child cannot tilt his foot back.

The chemo has really hammered Joshua this time, he has no energy and has been slowly sliding into a funk since yesterday. I feel his frustration, it burns through me. I speak the words of encouragement that I think he needs to hear, spout off clever analogies to help make his struggle seem more tolerable. All the while looking into his forlorn eyes as he struggles to deal with the fact that his body will not do as he commands, internally seething at the unfairness of it all. Helpless.

 I remind myself that today is just that, only one day of our long journey. One tired step to be followed by maybe one slightly less tired step as we trod through the ever changing landscape on our way to a place we cannot yet name. Journeying because we have no other choice. 

Then in the space of a scant few hours Joshua proves again that he is more mighty than anyone I have ever met. After I left for school Joshua got a special visit from one of his school mates Haley. She came over with her Mom Lisha and her little sister Mercedes. Lisha brought a delicious tray of lasagna, a caesar salad, and a decadent looking chocolate cake for Renee and the kids. I understand it was quite yummy. Josh had a good visit with Haley and managed to give her the grand tour of the house. After they left Renee took Joshua out on the golf course at his request to ride his scooter. He didn't make it as far as he usually does but he rode just the same. It never ceases to amaze how resilient Josh is. He never gives in or gives up. Some how he manages to find a reason to smile each and every day. Except when he is posing for a picture with a cute girl, then he has to look all GQ cover like. Serious and reserved;)



2 comments:

Nonna said...

Hey Snuggle Monkey,

It is so very difficult to read the first part of today's message. I inwardly rage at the unfairness of your situation. And then I read a little further and I see that your spirit is still unconquered! You remain upbeat, smiling and ready to face the world. You humble me with your reserves and fortitude.

Hang in there little warrior. You are powerful and awesome.

Tons of Love, Hugs and Kisses,

Nonna

Jamie(Sister) said...

Oh im sorry Joshy! I hope you feel better soon and it tomorrow brings another good day love bug! =) Thats a good picture with you and your friend. Shes cute... ;) You are a very strong and brave little boy and you seem to prove the doctors wrong and come out of your funks really fast. =) I know that you will do great with your little feet and legs love bug but just takes a little time and we all know that you have the strangth and the strong ability to get through it all!! =) We love you tons and see you guys on Mothers Day sweet pea

XOXO LOVE JAMIE BELLA AND CHRISTIAN