Sunday, May 31, 2009

4800 hours... Day 200 31MAY09


Today marks two hundred days that we have been a cancer family. It seems like a strange thing to take notice of or celebrate. But as a cancer family these kind of milestones are important to us. It means we have worked together to get here.

The surprising news this morning was that the kids, all of them, spent the entire night in the tent. Joshua came home this morning and I asked him how it was. He replied, "Best nights sleep I have had." Good for him. He and Jarrod both had a great time camping out with their cousins.

We went over later in the morning for breakfast and to take down the Taj ma Tent. Jarrod and I managed to get it down and folded without too much trouble. The rest of the afternoon was devoted to yard work. Even the boys pitched in and helped out for a while.

Joshua continues to do great, his appetite has not even begun to slow down. He is still eating all the time and has actually managed to get a little meat on his bones. His energy levels have been back to normal for the first time in quite a while and we are all enjoying it.

The rest of the week is going to be hectic. Joshua will go back in on Wednesday to see if he qualifies and if he does we will be in the hospital for a couple of days doing another round of chemo.

3 comments:

Miss Laura said...

Totally awesome Dudes! It had to be a great night for a camping party! 200 days - we are so happy things are on a petty even keel right now and hope that the steroids are a thing of the past for a while.

That is the neatest castle I have ever seen! I'm so glad you got to have a total family weekend - those are so rare.

I'll be heading to Dallas and Phoenix next Saturday so will log in when I can while on vacation visiting my grandkids.

Love, Laura & Frank

Nonna said...

Good Morning Snuggle Monkey,

What a wonderful weekend you had! And sleeping in a tent is better than sleeping in a bed any day (or night). I am so happy you are doing well, have energy and an appetite. It's so close to normal it would be easy to forget the bad days for a little while. I am hoping with everything I have that you will continue to have good days.

Hang tough mighty warrior - you are awesome!

Tons of Love, Hugs and Kisses,

Nonna

Jamie(Sister) said...

DAY 200!! Soo much fun Joshy!! thats great that you got to camp out with everyone!! =) I am soo happy that you are getting to do all of these cool things well normal things that you havent got to do in such a long time!! I love that you are getting your little cheeks back. ;) Wonder how much weight you have put on..... We didnt ge to come over because Christian has a little cold and we surely do not want to get you or any one else sick k love bug But we will see you soon for sure promise k. I love you guys tons and hope things continue to go awesome!!! Hope wednesday brings good news with your counts so that the chemo doesnt bring them down to low. =) See you soon!!

XOXO LOVE JAMIE BELLA AND CHRISTIAN
ps man im slacking on this i gotta catch up to Nonna.. ;)