Our first date... Day 133 25MAR09

Joshua again spent most of the day sleeping. He is, we believe, still in a period of somnolence which may go on for another week or so. This could have, according to some research papers I read, possibly been the cause of the fever last week. Children who get cranial radiation almost always experience somnolent episodes and they will spontaneously resolve after an average of 18.5 days. This would be later this week. It may continue for over 30 days but this is pretty rare. They may also have febrile episodes as well as anorexia and stomach issues.

During some of his awake time he spent some time outside with Jarrod. The weather has been wonderful for him to get a little outdoor time.

Renee and I had our first date this evening since Joshua got diagnosed. I had bought tickets to go see Jesse Cook last June. As the date for the show got closer and closer we really started wondering if we were going to be able to go. Luckily everything worked out and we had a great time. Up until now our "dates" have consisted of going to the hospital cafeteria together. Jarrod and Joshua spent the night at Renee's parents. It was fun to be a "normal" couple for a little while.

Tomorrow Joshua has school with Ms. Lydia, it has been tough on him to get back into the swing of things this week. He has been out of school for weeks now and he did not really feel like doing much today. He continues to eat well other than not knowing what he wants.

We hope to cruise through this week without any more problems and be ready for chemo on Monday with good counts and Josh rested up.