The sleep continues... Day 134 26MAR09

Joshua is still spending most of the day sleeping. He seemed to have a little bit more energy today. He could be thinking about getting out of his somnolent episode. Only time will tell.

School got cancelled today so Joshua got a small reprieve from homework. School work is one of the things that we can make up and do not really worry too much about right now. He will get caught up when he is feeling better and things have quieted down a little.

While he was awake this evening Joshua wanted to take another walk. So Jarrod and I went walking with him. He did pretty well but started to get tired pretty quick. Walking in the grass is good exercise for his legs. They are getting continually weaker from the Vincristine and his lack of exercise. Jarrod and I will keep taking him out to walk if he wants to go.

It is tough to see him so weak. He was always the kid with tons of reserve energy, always running, always climbing. Now he ambles along like an old man gingerly picking his way across the uneven terrain. It saddens me. I keep telling myself it is only temporary, that he will be his old self again soon. But much time has passed already and the road ahead is still long and hard. But just like Joshua walking this evening we will conquer the rough road one small tentative step at a time. We will walk this road together, all of us.