Sunday, April 19, 2009

Another hurdle to jump.... Day 158 19APR09

The meds didn't work. Joshua woke up in the middle of the night with stomach pains and nausea. The GI Doctor came in and we are going to go ahead with the scope tomorrow morning. This is not what we really wanted but it is the next step in this long and torturous journey towards finding an answer. The procedure may turn up something that will explain all of Joshua's stomach woes and lead to a way to manage it. Josh has already lost 3.5 pounds since he went into the hospital this time.

He was also scheduled to get his last round of chemo in Interim Maintenance tomorrow. His ANC has dropped to 387 today and he couldn't qualify right now, but he may bounce back tomorrow and get his chemo in the afternoon. We are not really sure. My hope is that after the procedure he will go back to the TCE and get his chemo and then the results will be back and maybe he can come home.

I got to see Jarrod today for the first time since Thursday. He spent the last few days at Renee's parents. While he was there he baked two cakes, a loaf of banana bread, and cookies shaped like flowers for Joshua. They all looked really tasty. He really enjoys baking. All of this change is really tough on Jarrod and it was nice that he got a little break from the chaos for a few days.

After lunch today we went up to the hospital to see Josh. Jamie and Christian came by and Renee and I took a long walk around the outside of the hospital property. It was nice to get her outside for a little bit. I know she is sick and tired of being stuck in that tiny little room. The walls really start to close in after a while. Joshua was in pretty god spirits today. He was a little tired but had plenty of energy to play with Jamie and Christian.

When we got home Jarrod and I managed to whip up some really good sushi for dinner and get in a nice walk together. In the morning he heads back to school on the computer and our "normal" life together.

Tomorrow is a scary day. Josh will be put to sleep yet again. Hopefully it will yield some answers and a way to resolve the problems he has been having. Renee and I both are so tired of not knowing what is wrong and not being able to help Joshua feel better.

So one more time we will wait for him to come back to us from the world of dreams.


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Jamie(Sister) said...

PRAYING for some news tomorrow love bug!! We are hoping that everything will go well which im sure it will. =) We had fun once again with you today monkey butt. You love touching my belly and the baby lvoe it to. =) I hope you get to go home soon Joshy. We will be sure to call tomorrow and see how everything went. =) Love you


Nonna said...

Hey Snuggle Monkey,

What a beautiful photo of one angel reaching out to touch another angel! Tell your Daddy that photo is definitely a "keeper".

I am so very saddened to hear you are still having stomach pains. I hope and pray the scoping will find the answers and you can go back to being a strong warrior.

Your Brother Jarrod is so wonderful to have baked you so many tasty treats. I hope you are able to enjoy them.

I will be waiting by the phone today to hear a tummy report and keeping everything crossed that it goes easy for you.

Tons of Love, Hugs and Kisses,


Miss Laura said...

Josh, I hope they find the answers to your stomach pain today so that you may eatsome of Chef Jarrod's specially baked items!

Loved seeing you touching your niece inside Jamie's tummy! A girl for you to spoil:)

Renee & Lee, all our thoughts and prayers are with you and the family. Love, Laura & Frank