Wednesday, April 8, 2009

A pirates life for me.... Day 147 08APR09

Joshua would make a handsome pirate. Living the life of a wanderer chasing fortune and the horizon. Plus with a light saber he would be really hard to beat in a sword fight.

Our weather has been less than friendly the last few days but today turned out to be a great one. Josh asked if he could go with us on our walk this evening. I grabbed up a soccer ball hoping that I could persuade him to kick it a little bit once we got out on the fairway. To my surprise and delight he started kicking the ball as soon as we got on the grass. He managed to dribble it down the fairway over 300 yards. It was a great workout for his legs and it was wonderful to see him playing one of his favorite sports again. He has gained a little bit more strength. Sadly he has enough strength to kick the ball but several times he stumbled and dropped to one knee and was unable to get up by himself. He was tired but not worn out when we got back. I am sure he will sleep really well tonight.

In the morning we get up and go to the hospital for the chemo trifecta. Joshua will be getting an LP, IT Methotrexate, Vincristine, and IV Methotrexate, plus labs. It will be a full day for him. I am very thankful that he has had a chance to rest up at home for the last week. I have seen a great improvement over March.

His appetite has reached steroid proportions without the moodiness. He is constantly hungry and asking for food. He will eat too much and get a stomach ache and as soon as it recedes he asks for more food. It is all we can do to keep up with him right now. But our motto has always been ,"Eat when you can", so we will continue to feed the food furnace.

Hopefully tomorrow will go without any problems. It is always a scary prospect when Joshua will get general anesthesia. I don't really think it is something you ever get used to. We will wait together and he will come home to rest.


Nonna said...

Hey Snaggle Snuggle Monkey,

How wonderful to see you outside playing!!!!! Your kitchen fairy must be doing an excellent job putting energy into your body.

Keep up the good work and stay happy.

Tons of Love, Hugs and Kisses,


Jamie(Sister) said...

WHOO HOO JOSHY!! Today is another awesome day outside a litte cool though. =) YOU look great with the pirate hat on! =) I love that kicked the soccer ball for a little bit on your walk monkey. Thats great and even though you might have fallen down a few times all you have to do is get right back up and do it again. Thats what makes it fun sometimes. =) Well i love you and hope you have a good day tomorrow love bug. We will be calling to see how everything went k.