Friday, January 23, 2009
Not this time... Day 72 23JAN09
Well camp didn't happen. Joshua's ANC only inched up six points to 138 today and he is still having trouble eating enough food. Doctor O is going to try a couple of thing to help stimulate his appetite and hopefully get him eating real soon. If none of it works he will wind up with a feeding tube. I really hope for his sake that is not what we have to resort to. He was really bummed about not being able to go to camp but there will be other times. We are going to have to stay in the hospital until his counts get to 500 and the Doctors are sure he is getting enough nutritious food. The longer his counts stay low the longer we wait until he can start chemo. It feels really weird to be hoping for our child to have more chemo but the delay just feels worse.
The weather was nice enough today for Josh to get an hour pass to leave the floor and go take a walk around the hospital and even outside for a bit. He said he really liked getting to go out with mom.
Renee got to take the evening off and come home for the night, her mom is staying with Joshua. This is great because tomorrow is our twelfth wedding anniversary! I am glad that we will at least get to spend part of the day together. It is really hard on all of us being apart for these extended periods of time. She had a really rough time with Josh today. He was in a bad mood and taking it out on everyone that was close by. I am really thankful that she can be at home for a little while.
Jarrod got to come to work with me today and sit in on one of my classes. According to him I am a pretty good teacher although he could not remember anything I talked about. Sounds like one of my regular students:) It was really cool to have him there with me and I hope we get to do it again real soon.