Sunday, January 18, 2009

Day 67 Update - 18JAN09







I got some new pictures of the party yesterday from Sally so I thought I would share.

Tomorrow morning we rev back up and start another round of chemo. Renee will have Joshua at the clinic at 9 in the morning to get blood drawn and see if his CBC qualifies. We are really not liking the forks in the road, if he doesn't qualify we are only postponing the inevitable and any delay scares both of us. We want our baby to get better, onward and upward, no stopping or coasting backwards. It feels like every minute we delay gives the leukemia cells a chance to get a foothold, start rebuilding themselves. I know this is ridiculous but this is what I picture in my mind and it is scary friends...

Joshua is in good spirits and we had a lot of fun today playing and hanging out together. Our biggest issue right now is getting him to eat enough food. When he was on the steroids I was waiting for the grocery store to offer us a key so we could get food in the middle of the night. Now he takes a few bites of something and puts it down. I asked him earlier what we could do to get him to eat more and he replied, "have them give me Prednisone." The practical wisdom of children. I walked away thinking, "if you had any idea what you were like on steroids you would not even bring that idea up."

We are steeling ourselves for another overnight stay at the hospital and hoping that the combination of drugs does not kick off a high fever like it did last time. We are supposed to go to camp this weekend and all of us are really looking forward to going.

3 comments:

Jamie(Sister) said...

AWW JOSHY DAY 67!!! You and jarrod have a new cousin.. =) yay and its a another boy. =) We are soo proud of you monkey butt!! you are doing such an amazing job!! Just gotta get you to eat more love bug and keep a smile on your face. You guys looks like yall had soo much fun yesterday. that great. I hope tomorrow turns out with good news! i now it will just keep you head up and keep those spirits high and your head up. Love you guys all so much! and good luck tomorrow. =)

XOXO LOVE JAMIE BELLA AND CHRISTIAN(and the little one in my tummy. =)

Laura and Frank said...

Lee & Renee, we are so proud of you and they way you have handled all of this. The same thoughts you have often go through ours and I shut them out because the alternative is not acceptable. Joshua is a strong boy and with all of you beside him and God holding him in His hands we pray for the best treatment and recovery.

Congratulations on that new nephew, finding your natural brother and mother and having that great addition to your already very large and warm family. Still can't quite believe you becoming grandparents, but you will enjoy it and being young ones, won't get exhausted so easily.

We love you, Laura & Frank

Nonna said...

Hey Snuggle Monkey,

Looks like you had a blast at the party - I love seeing you having fun. I hope you ate lots of cake and ice cream.

Jane Lipscomb, the lady who made your prayer shawl, was asking about you in Church yesterday. She said you are in her prayers every day.

How about that new little cousin of yours! He is as beautiful as you and Jarrod were and I am impatiently waiting to find out his name.

Love, hugs and kisses,

Gramma Linda