Tuesday, June 30, 2009

The races continue... Day 229 29JUN09

Joshua is doing okay today. His counts have fallen again but he is feeling fine. The staph infection seems to be responding to the vancomycin right now but they had to up his doses today from every 12 hours to every 8. Dr. Wynn informed us that he will have to stay in the hospital for 10-14 days and that he will probably not be able to make it to camp next week but there is still a chance. We will see how he progresses over the next few days.

The plasmacar racing continued at the hospital today with Jarrod racing against Dr. Wynn. It was a really close finish. Luckily Renee was able to capture the racing excitement for all of us.

It is really cool that all the staff at the Children's Hospital let the long term kids have fun and the rules are really flexible. When you spend as much time there as they do it really helps. The hospital feels like our second home. I always wanted a little place on the beach but I guess for now this is a better choice.

At least Josh is keeping a good attitude so far. He was playing LEGO star wars when I went to see him tonight after my long day at school. He was smiling and having a good time. His spirit is a testament to the unquenchable hope that lives in a child's heart.


Nonna said...

Good Morning Snuggle Monkey,

You're turning into a little speed demon aren't you? NASCAR in hospital corridors - what a hoot! Wonder if ESPN will pick up the broadcasting rights?

I am glad to hear you are feeling better and am hoping with everything I have that you will be able to make it to camp. I know you've been looking forward to the trip.

Hang tough mighty warrior - you are The Champion.

Tons of Love, Hugs and Kisses,


Jamie(Sister) said...

Man I would swear that you didnt have leukemia love bug.. ;) You guys just have way to much fun in that place....which is soo cool. All smiles today i see Joshy. =) Thats good to see and hear and thats great that the meds are kicking that staph infection right in the butt.
Jarrod you are a pro at racing those cars but your legs are so long you almost cant fit... ;) You just need to stop growing so darn fast dude. ; ) I love you guys and cant wait to come up and see all the fun first hand. See you soon