He has been feeling fine since he started on the vancomycin and was having a great time today racing around the halls, pole surfing, and playing on the wii that Jarrod brought in and set up for him. He even got the nurses involved in his need for speed. His energy was good today and he has been eating grilled cheese sandwiches for breakfast, lunch, and dinner. He got another platelet transfusion this morning and like always he was energized for the rest of the day.
After dinner tonight Joshua and his next door neighbor and friend Demitri went to see a musical show that was going on at the hospital. The production group was teenagers from Salt Lake City, Utah called Clayton Productions. They did singing and dancing from Disney, broadway, and the fifties. Joshua enjoyed the show and he was very popular afterwards. Reminds me of my high school days... I wish... Notice Joshua's "ride" parked under his chair.
I think they were wanting his autograph not the other way around!
Hopefully in a few days they will start giving Josh and Renee day passes to come home for a little while and escape the mundaneness of being stuck in the hospital constantly. At least he can rest here and get caught up on his school work and such. We both miss them already.
Jarrod and I came home and had a rather late but delicious dinner of sushi and nann with a yogurt dip. He is becoming much more of a culinary adventurer as he grows up, and with me around he will never be short of new things to tempt his palette with.
So here we are at another big bump in the road. Renee and Joshua living at our hospital home, Jarrod and I living at our other home.
We will manage, but it still sucks.